Friday, August 22, 2008

Everyone has been telling us that we need to start a blog so here it is.

Well most of you know that we are expecting a little boy in January. We are soooo excited!!! Trey and I are looking forward to starting a family. Well last Thursday we saw one of our doctors, the specialist or perinatologist, Dr. Mayberry. We were having our 16 week ultrasound, hoping to find out if we were having a boy or a girl. I'll never forget the look on the Dr.'s face when he told us that the baby appears to have spina bifida. He showed us what he was seeing and explained the classic signs that were there. He then told us we were having a boy. And that he was going to send us to a Dr. in Ft. Worth, another perinatologist. We went to Ft. Worth on Sunday and got to spend the evening with my mom (her and my Aunt Teri drove up to meet us), aunts, and grandma and cousins. Monday we went to see Dr. Tabor and they did another ultrasound. He basically confirmed the diagnosis and said that he would set us up with a neurosurgeon, who would preform the surgery after the baby is born. We has also heard of a surgery that they do while the baby is still in the womb, however Dr. Tabor didn't think we would be candidates for it. And at this point I wasn't really feeling like it was something I wanted to do.

Well, my mom got the number for me to talk to someone that had actually had the surgery in 2003. I called Kim and talked to her about the surgery, it is still in the trial study stages so you have to qualify for it. If you do then there are 2 groups you can be in, a prenatal or postnatal surgery. And they select groups "randomly". After talking with Kim I felt like I had to do it. I really want to do everything I can to help Cannon. So Wednesday I called to center for the study and on Thursday that called and got all my information. Now we are waiting for the team of doctors to go over my health history to see if I am a candidate. The only red flag is the episode I had in April with my head. Whether it was a stroke or migraine. And the "antiphospholipid syndrome" clotting disorder (I will touch back on that in a bit). So please pray that this is not too significant for their study. Trey and I are looking at this as giving it all to God, and if it is His plan for us to have the surgery then we will qualify and everything will work itself out. Otherwise He will shut this door and open the one we need to follow through. All we really want is healing for Cannon. Please continue to pray for us to have the wisdom to know where to go from here. I have to believe that no matter what happens there is a reason that I may not understand at this point, and that God is ultimately in control.
We have an appointment with a pediatric surgeon at Cooks in Ft. Worth for Sept. 11. If the study doesn't work out and Cannon has surgery after he is born, this is who would do it. They would do an amniocentesis at about 37 weeks to check for lung development, and if his lungs are strong enough we would have a scheduled C-section.
Okay, antiphospholipid syndrome is an autoimmune disorder that was picked up on one of the labs I had done in the ER when I had the "stroke like" episode back in April. It is a clotting disorder that puts you at a higher risk for getting a blood clot. During pregnancy you have a bigger blood supply therefore you are already at risk for a clot, so add that with this disorder and I am at higher risk for clots, stroke, and miscarriage. I am continuing to take a baby aspirin and was also started on a blood thinner shot that I take every night.
It has been a lot to take in in such a short time. Between Cannon and I this pregnancy has gotten off to a rough start. However I am grateful that however scary it may be at first, these are both things we can get through. All three of us have been covered in prayer, and I would like to thank everyone for that. Please continue to pray for us. We are specifically praying for acceptance into the study so that we can have immediate treatment for Cannon. Our number one prayer is healing, however it may come.
I appologize for getting wordy at times, I just wanted to get everything in so everyone would be on the same page. It's starting to run together who knows what and who I need to tell what. Hopefully this blog will help keep everyone filled in. It's getting late, but I will try to get on this weekend and put some pictures.

God Bless!

7 comments:

Lisa said...

Well here we are giving you all the support we can Ali. I know we are distant but words travel fast. We love you guys so much. Lisa and I will keep yall in our prayers. We hope everything works out in the best way it can. I know you are a very strong lady and best mom Cannon can and will ever have. We love you talk at you guys laters!

Kim, Aaron, Jake and Jack said...

We are certainly thinking of yall and sending many prayers up on behalf of Mr. Cannon! What a precious little boy...and how blessed he is to have you as his momma! We love you. Remember you can call us if you need anything! We are what...15 minutes away!? Feel free to stop by. We're always here should you need us.
Love,
Aaron, Kim, Jake, Jack and baby

Leah J. said...

First of all, look at that precious sono picture! Sweet Cannon! I have been thinking of and praying for you, Trey, and Cannon. I am so glad that you started this blog so that my prayers can be more specific with each new piece of information you guys receive. Please call when you are in the DFW area for Dr. appointments if you guys need a place to stay. We have a guest room with y'all's name on it!

Jenn said...

Ali...my only sister. You are going to be a wonderful MOM and I am so happy that Cannon will have the best MOM in the world. I WILL pray for you guys and your little man. Let me know if I can do ANYTHING!!! Love you guys. jenn

~Rachell~ said...

I love you and thanks for posting the blog. I mean when you hear bits and pieces from others things are missed out so I am glad I got the chance to read what all is going on. You have been in my prayers and I am so glad you are in high spirits and that you know God has a plan for you, Trey and baby Cannon. I hope you or Trey will continue to post more info on the blog as needed. Remember you are in my thoughts and prayers and we love you very much. Continue to be strong as you always have been in life and remember God only puts things in our life that he knows we can handle. He knows you better than any Ali and it will all work out. You are a very loving and caring person and always have been. Keep in touch. Love always, your cousin,
Rachell

Jordan and Kacey and Caitlyn said...

We're definitely praying for you guys.

Bob said...

great to have lunch with you and your peeps today!!! thanks for sharing information and, more importantly, your heart and faith. Mr. Cannon will be a boomer! Who knows? Maybe he'll become a shot heard 'round the world! In the meantime, you, Trey, and Cannon consume much prayer time. Blessings on you all! PS: remember you have a hiding place if you need one!